Saturday, May 14, 2011

Getting ready for CCSVI, round 2 - prayers needed!

So, it's a rainy Saturday afternoon/evening. Great time to write in my blog, don't you think? I just got up from laying down on my icepack for a headache. I lived on those ice packs to control my MS head pain for 13 years. They were the only thing that got me through the excruciating pain that felt like my head was in a vice all day long.

When I had my original CCSVI procedure last August, one of the first improvements was my head pain miraculously went away. I mean miracle time, it didn't lessen friends---it was GONE. That in itself was a profound miracle, and anyone who knows me can attest to that because my head pain put me down for the count, many, many times. But I also had other improvements from the first procedure. My extreme fatigue that so totally crippled me, was now also absent. I would have taken just those two improvements, but there were more. My right leg, which I hadn't been able to lift in about 3 years was now mobile again, and I also saw huge improvements in my cognitive function.

In many ways, I was reborn after my first angioplasty surgery! I felt so good, and was so energized, much more so than I had been in years, that I initiated and took on the task of working in tandem with the CCSVI Alliance in a big educational and Inaugural Walk-n-Roll weekend in Tampa, March 4th and 5th.

It was a monumental assignment, but I dug in my heals, and along with Michelle Brown of the Alliance, we pulled together a phenomenal event educational seminar and auction at Moffitt Cancer Center and Inaugural Walk-n-Roll at beautiful Lettuce Lake Park. The weekend was a smashing success. We had many MS patients who attended. They were intrigued and captivated by the CCSVI patients who spoke along with the 4 doctors, 2 IRs and 2 neurologists, who came to educate and share their knowledge of what CCSVI in MS means. It was a wonderful 2 days of everything CCSVI, and many people learned and were excited about telling others about what CCSVI can do to help others with MS. Mission Accomplished. Whew-----Relax Nicki.

It's been over 2 months since our event. Now, in hindsight, I admit that I probably should have taken those 5 months I poured myself (days and many nights) into organizing for others to learn about the benefits of this simple procedure and instead dedicated myself entirely to helping myself. But that's just me. That's just the way I am.

When I feel good, I like to do things for other people, that's just how God made me. And I felt SO GOOD after that August 19th surgery, I wanted to help the world learn about CCSVI and I was determined to do it. So I threw myself into making that weekend the absolute best that it could be, and I'm proud and happy to say that it was.

(I did devote myself to 3 months of physical therapy, after my first surgery, and it did help me tremendously, but admittedly I slacked off of it, after the holidays and as we rolled into the final phases of planning and pulling our event together, I was just too busy to work on "me." Not a good idea Nick - oh well what was I gonna do - I had commitments.)
Fast forward 9 months one day to May 20th, 2011. After conferring with Dr. Arslan over this past month about my growing list of symptoms that seem to have re-appeared, we have decided to go in for round 2 and I am ready. My headaches have returned, quite annoyingly. One thing I haven't had return is my fatigue - I am still going pretty strong, so that is a real blessing. My cognitive function could use alittle help of late and my walking is a bit off, although I can still lift my right leg so that is good. Just a little tune-up, that's what I need!

I've had 2 dopplar ultrasounds of my jugular veins in these past 9 months and they have shown the blood is still flowing correctly, but until Dr. A. gets in there and looks around he really won't know what's going on. So onward we go into the CCSVI frontier.

A few people have been surprised that I have to have this done again, thinking it was a one time procedure. Unfortunately, that is not the case. A few others are surprised that I am proceeding in without a battery of tests. The tests are just diagnostic and don't show much anyway. They aren't really necessary, especially if you've had it done before. I've had all the tests. I know I have CCSVI, now, let's go fix it!

I totally trust God Almighty and my talented and compassionate interventional radiologist, Dr. Arslan. They both know what they are doing and I couldn't be in better hands.

So, this coming Friday at 1 pm, if you get a minute, just please say a little prayer for me. Please pray for God's blessings on my surgery and for me to have the dramatic improvements I had the first time and even more so. That's what I'm praying for. I'm claiming another miracle, and I know that God will give me whatever He deems appropriate, just like last time.

Just like in Jesus time, the Lord is still performing miracles everyday, and I am wanting to claim miracle #2!

My verse is about Jesus healing in Matthew 4:23

"Jesus went throughout Galilee, teaching in their synagogues, preaching the good news of the Kingdom, and healing every disease and sickness among the people."

My prayer for today:

Dearest Heavenly Father, Almighty God:

It's me again, coming to seek your blessings and healing upon me, one more time. Please guide Dr. Arslan through my surgery and help him to see what he needs to see, and fix what he needs to fix. Give him your wisdom. Watch over my nurses and techs and help them to be the best they can be.

Watch over my husband, as once again, he sees me through another health challenge. Give me the strength and stamina to use this procedure and re-energize my focus and my energy on getting well.

In Jesus Name I pray,
Amen and Amen

                                           Dr. Arslan and me, October 5th, 2010.


  1. Your faith is amazing - just like our God! I will definitely be praying for all of you, fervently!

  2. Thank you for your kind comment. I totally rely on Jesus for all the ups and downs in life. He has never let me down yet!

    God Bless you!

  3. i will be praying for you........
    Thanks for sharing a idea....Great post and informative
    CCSVI Mexico


I would love to hear your comments on my blog. Please leave them here and God Bless you~