Tuesday, June 11, 2013

The Waiting Game~

Well, here I am again. I'm in the waiting mode, AGAIN. Having a disease like MS teaches you a lot about waiting and patience, that's for sure. So, what am I waiting on this time? Well, I'm waiting on a new comprehensive MRV test of my neck and jugular veins to determine any new venous stenosis that may have built up in my body. WHAT you say, speak English. Ok, I'll try.Here goes~~

Back in August of 2011, I had a new procedure to help symptoms of my MS-- (for I also found out at that time, that I had Chronic CerebroSpinal Venous Insufficiency, along with my MS)

When I had a venous angioplasty to open up my clogged jugular veins (they were clogged up 80% on both sides) and then, all of the sudden, low and behold..... many of my most debilitating MS symptoms were drastically improved! Symptoms such as the overwhelming fatigue that ruled my life, head crushing headaches that severely crippled me, cognitive function that left me sounding like an idiot many days, balance issues, cold hands and feet and other things were suddenly cleared up. Praise the Lord!!!! Thank you Jesus!

WHAT you say? A Cure for MS??

 No, it's not a cure, but it sure does help.

What is the connection? There definitely is one and there are a devoted group of doctors around the world trying to put the pieces of this huge puzzle together. MS, a vascular disease, not an autoimmune like we've been told for years? Yes, it appears to be so, it's just a matter of getting the naysayers on board and proving the science, but we're getting there little by little.

So, now what am I waiting for? Well, I'm happily waiting for something known as the "Haacke Protocol" MRV procedure to come down here in the Tampa area. I'm going to be the first local guinea pig for the Haacke Protocol. Designed by brilliant physicist Dr. Mark Haacke at Wayne State University, the "Haacke Protocol" is the cadillac of MRV testing prior to the CCSVI procedure and I want it. I want to know exactly everything that's going on in that head of mine and I'm willing to wait until I can get what I want. I want a complete roadmap of my head! God has opened the doors and the process has begun; the players are in place, it's just a matter of waiting on the Lord for His perfect timing, which it always is.

So, in the meantime, I have to admit, I'm suffering these days. My walking is really bad, my bone crushing head pain has returned and my burning ears, which I lived with for years before I ever heard of anything called CCSVI, have returned with a vengeance. I fell  last week. oh brother :(
which bruised my ego more than my body, but it's still a reminder of what the disease has done to me and continues to do. I can feel myself slipping away just like I was before I had the first CCSVI procedure in 2010. Help me, Lord and I know He will! He is a God of Promises and He doesn't ever disappoint His children, of which I am thankfully one.

The funny thing about MS, is you slowly go downhill before you even know it. You slowly slip away and before you are even aware, you're in a really bad place, emotionally and physically. Thank you Lord that I'm not there emotionally, but, I am there physically, and I need to turn this around and fast!

I'm ready to turn my health back around in the other direction! I'm ready to move forward and not backwards! I'm ready to claim my healing in the name of Jesus, my Savior! "Then they cried to the LORD in their trouble, and he saved them from their distress.  He sent forth his word and healed them; he rescued them from the grave.  Let them give thanks to the LORD for his unfailing love and his wonderful deeds for men." Psalm 107:19-21

I am waiting on God's perfect timing to put His plan together for me, right now. He laid out my life plan before the foundation of the earth, and He knows exactly how this is all going to come together. I am just trusting in His perfect Will for my life, knowing that everything will be exactly as the Lord wants it to be. Thank you Jesus, my Savior! 

My verse for today is above in red.

My prayer for today:

Heavenly Father, 

I come to you today, pleading for relief from my MS symptoms. Please Lord, open the doors for this procedure quickly so I can get the relief I need. Help me to have patience while I'm waiting, which isn't easy, but I know it's all part of your perfect plan. Give me the strength to endure the hardship I face because of this, for I know through my suffering I become closer to You.

I pray,
Amen and Amen

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